Voice Up Project - Metabolic Support UK

Voice Up Project

Voice Up is here for you to share and access stories from real young people, like you, living with an Inherited Metabolic Disorder. From managing your symptoms and moving to adult services to travel, higher education and making friends – whatever it is that matters to you, our Voice Up community will bring you insights and advice across podcasts, videos, and blogs, as well as the opportunity to share your own experiences.

Who can take part? We’re currently looking for participants between the ages of 16 and 25 who are living with an Inherited Metabolic Disorder either through their own diagnosis or in supporting a sibling, friend, or loved one.

If you’d like to register to take part, you can do so here: https://forms.gle/nXptKtkGwHdwtNHP7

For our top tips on recording videos, see this page: Voice Up! Home Video Top Tips

If you don’t currently meet this criteria but feel that you have something to contribute, please get in touch with Sally on sally@metabolicsupportuk.org

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Rare Autoinflammatory Conditions Community - UK (RACC - UK) ®

Contact Us: info@raccuk.com


Registered Charity Number in England and Wales: 1184846

ICO: ZA322203 

Disclaimer: Please note that RACC - UK provides this information for the benefit of the Autoinflammatory community. RACC - UK is not a medical provider or health care facility and thus can neither diagnose any disease or disorder nor endorse or recommend any specific medical treatments. Patients must rely on the personal and individual medical advice of their qualified health care professionals before seeking any information related to their particular diagnosis, cure or treatment of a condition or disorder.

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