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Rare Autoinflammatory Conditions Community - UK (RACC - UK) ®

Contact Us: info@raccuk.com


Registered Charity Number in England and Wales: 1184846

ICO: ZA322203 

Disclaimer: Please note that RACC - UK provides this information for the benefit of the Autoinflammatory community. RACC - UK is not a medical provider or health care facility and thus can neither diagnose any disease or disorder nor endorse or recommend any specific medical treatments. Patients must rely on the personal and individual medical advice of their qualified health care professionals before seeking any information related to their particular diagnosis, cure or treatment of a condition or disorder.

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Rudy Study

"Living with a #raredisease? Know somebody who is? Or are you a #clinician working in this space? The #RUDY Study aims to improve understanding around rare diseases and helps develop new tests & treatments. ‏ It is open to anyone in the UK with a rare disease and participation can be done online from the comfort of your own home!

To find out how you can get involved, visit: https://research.ndorms.ox.ac.uk/rudy/ - here you will find information sheets, consent forms and registration instructions.

Although do feel free to send us a message, we're here to help!

Please do spread the word about RUDY! The more participants we have, the better we are able understand these rare diseases"