"Living with a #raredisease? Know somebody who is? Or are you a #clinician working in this space? The #RUDY Study aims to improve understanding around rare diseases and helps develop new tests & treatments. It is open to anyone in the UK with a rare disease and participation can be done online from the comfort of your own home!
To find out how you can get involved, visit: https://research.ndorms.ox.ac.uk/rudy/ - here you will find information sheets, consent forms and registration instructions.
Although do feel free to send us a message, we're here to help!
Please do spread the word about RUDY! The more participants we have, the better we are able understand these rare diseases"