Patient Experiences

Rachel Rimmer- living with Hyper IGD Syndrome

"I was born with a rare Auto Inflammatory condition called Hyper IGD Syndrome. This involves joint pain; joint inflammation; inflammation of my internal organs (spleen and liver mostly); fevers; rigours; ulcers; frequent infections of the ears, nose, throat, chest, UTI, skin and eyes."

Video //
Rachel Rimmer

Patient with Hyper IGD Syndrome


Frequently used words and phrases


"Having to prove my symptoms"

"Lack of interest"

"Disjointed care"


"Invisible illness"

"Inability to see the bigger picture"

"Lack of communication"

  • Facebook
  • Twitter
  • Instagram

Rare Autoinflammatory Conditions Community - UK (RACC - UK) ®

Contact Us:


Registered Charity Number in England and Wales: 1184846

ICO: ZA322203 

Disclaimer: Please note that RACC - UK provides this information for the benefit of the Autoinflammatory community. RACC - UK is not a medical provider or health care facility and thus can neither diagnose any disease or disorder nor endorse or recommend any specific medical treatments. Patients must rely on the personal and individual medical advice of their qualified health care professionals before seeking any information related to their particular diagnosis, cure or treatment of a condition or disorder.

Data Protection & Cookies Policy

Terms & Conditions