Patient Advisory Committee

Are you a patient or carer over the age of 18?


Have you been diagnosed with an autoinflammatory condition?

Do you have an interesting story to tell about your journey to diagnosis and treatment?

Would you like to help influence the work of our organisation? 

Are you able to volunteer a few hours of your time each month? Please read the document and get in touch:

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Rare Autoinflammatory Conditions Community - UK (RACC - UK) ®

Contact Us:


Registered Charity Number in England and Wales: 1184846

ICO: ZA322203 

Disclaimer: Please note that RACC - UK provides this information for the benefit of the Autoinflammatory community. RACC - UK is not a medical provider or health care facility and thus can neither diagnose any disease or disorder nor endorse or recommend any specific medical treatments. Patients must rely on the personal and individual medical advice of their qualified health care professionals before seeking any information related to their particular diagnosis, cure or treatment of a condition or disorder.

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