Rare Autoinflammatory Conditions Community - UK (RACC-UK) 

RACC - UK is the UK’s patient-run, patient charity for patients and families suffering from #Rare Autoinflammatory conditions.

We are a completely self-funded organisation, led by volunteer patients, parents, and experienced Medical Professionals, in the fields of Rheumatology, Immunology and Nephrology.

We also have several closed private Facebook discussion groups with over 400 members from the UK suffering from #Rare Autoinflammatory conditions.  


 In addition, RACC - UK, are RIPAG members of the European Reference Network, Rare Primary Immunodeficiency, Autoinflammatory and Autoimmune (RITA) diseases. Also, we are involved in the EURORDIS Drug Force Task, DITA (2019-2020)


We are registered stakeholders for NHS Clinical Reference Groups relevant to Autoinflammatory conditions.


Patients in the UK with Autoinflammatory conditions have often endured a long delay to diagnosis which impacts on long-term health and quality of life.
Autoinflammatory conditions are
#Rare genetic diseases which often leave patients feeling vulnerable and isolated with little support.

The symptoms that patients can suffer from with Autoinflammatory Conditions...


Sore Throats


Gastrointestinal Issues

Enlarged Spleen

Aphthous Ulcers: Mouth and Genitals

Inflammation of the stomach, joints and skin

Uveitis (inflammation in the eyes)

Respiratory Issues


High C- reactive protein (CRP)


Enlarged Lymph Glands

Video //

Norvartis- Periodic Fever Syndromes


World Autoinflammatory Awareness Month


Organisations around the world are coming together to raise awareness about Autoinflammatory conditions. 

"Published on Nov 14, 2012

Animated infographic on periodic fever syndromes - rare, long-term inflammatory diseases characterized by repeated bouts of fever in recognizable patterns. They are caused by gene mutations which affect"


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Rare Autoinflammatory Conditions Community - UK (RACC - UK) ®

Contact Us: info@raccuk.com


Registered Charity Number in England and Wales: 1184846

ICO: ZA322203 

Disclaimer: Please note that RACC - UK provides this information for the benefit of the Autoinflammatory community. RACC - UK is not a medical provider or health care facility and thus can neither diagnose any disease or disorder nor endorse or recommend any specific medical treatments. Patients must rely on the personal and individual medical advice of their qualified health care professionals before seeking any information related to their particular diagnosis, cure or treatment of a condition or disorder.

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